Redefining Autism: The Call for a Profound Diagnosis

With a push for a new 'profound autism' diagnosis, advocates argue for tailored support for those needing constant care. While expanding awareness, this shift raises concerns about breadth in autism services. Experts emphasize a unified approach to services across the autism spectrum.

As autism's definition expands, advocates are pushing for a new diagnosis, 'profound autism,' aimed at those needing constant lifelong care. This initiative seeks to ensure appropriate support and services for a segment often overlooked, as emphasized by Judith Ursitti of the Profound Autism Alliance.

Autism rates are increasing, partly due to broader spectrum definitions and heightened awareness, which often highlight mild cases. However, the Trump Administration's focus on unproven autism causes complicates understanding and spreads misinformation, even as funding for research grows.

Research estimates suggest that a quarter of children with autism may have 'profound autism,' a concept introduced in 2021. Critics worry this label might divert attention from broader autism spectrum needs, but advocates stress unified advocacy for comprehensive support across all severity levels.