Urgent Call for National Haemophilia Treatment Guidelines in India

Experts have urged the adoption of national treatment guidelines for haemophilia in India to improve diagnosis and access to preventive therapies. Despite advancements, haemophilia remains underdiagnosed, affecting care quality. Calls for India-specific standards emphasize early detection, prevention, and resource considerations to enhance patients' quality of life nationwide.

In a significant health plea, experts have urged the establishment of national standard treatment guidelines for haemophilia across India. This initiative aims to streamline patient care, enhance early diagnosis, and broaden access to preventive therapies for the rare bleeding disorder.

Haemophilia, often hereditary but sometimes arising from spontaneous mutations, remains largely undiagnosed in India. This results in only 20% of cases being identified, leaving a staggering 80% of patients untreated, experts highlighted on World Haemophilia Day.

While advances in non-factor therapies have shown promise, their limited availability underlines the pressing need for India-specific guidelines and a shift from reactive to preventive treatment across the nation, noted experts.